Co-construction of chronic illness narratives by older stroke patients and their spouses

نویسندگان

  • Eloise Radcliffe
  • Karen Lowton
  • Myfanwy Morgan
چکیده

Illness narratives have mainly focused on individual patients’ accounts, and particularly those of people experiencing the onset of chronic illness in mid-life. However, a growing number of older people are spending their later life with their partner, with both experiencing complex morbidities. We examine the shared creation of meanings among older stroke survivors and their spouses and the implications for individual and couple identity. Joint biographical narrative interviews were held with 13 stroke survivors aged 75–85 and their spouses. The analysis examined both narrative content and narrative style. Three main types of co-presentation of identity were identified. The ‘united couple’ described couples who pulled together and emphasised their accommodation of the stroke and normality as a couple, despite often considerable disability, and was strongly underpinned by collaborative interaction in interviews. Caring relationships were distinguished as ‘positive’, involving selfreliant couples who took pride in how they managed and ‘frustrated’ in couples who emphasised the difficulties of caring and hardships experienced and were characterised by a conflictual style of narrative. We argue that joint interviews provide new forms of data that extend notions of how illness is lived and demonstrates how the marital relationship can mediate the experience of chronic illness and disability and its impact on identity.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Co-construction of chronic illness narratives by older stroke survivors and their spouses.

Illness narratives have mainly focused on individual patients' accounts, and particularly those of people experiencing the onset of chronic illness in mid-life. However, a growing number of older people are spending their later life with their partner, with both experiencing complex morbidities. We examine the shared creation of meanings among older stroke survivors and their spouses and the im...

متن کامل

[Care and chronic illness: family caregiver's viewpoint in northeast Brazil].

The provision of care causes stress in everyday family dynamics leading to physical, mental and emotional complications in caregivers and spouses' loss of liberty and/or overwork. Between March and November 2006, this anthropological research examined family caregiving in the context of Chronic Obstructive Pulmonary Disease (COPD). By means of ethnographic interviews, illness narratives and par...

متن کامل

Comparison of Depression and Quality of Life Between Patients on Hemodialysis and Their Spouses

Introduction: Patients on hemodialysis and their spouses experience various stresses during illness and dialysis treatment. The aim of this study was to compare depression and quality of life between patients on hemodialysis and their spouses. Methods: An analytical and cross-sectional study was performed using the WHOQOL-Questionnaire tool and Beck Depression Inventory-II to assess the qualit...

متن کامل

Achieving Integrated Care for Older People: What Kind of Ship?; Comment on “Achieving Integrated Care for Older People: Shuffling the Deckchairs or Making the System Watertight for the Future?”

This paper considers an implication of the idea that proposals for integrated care for older people should start from a focus on the patient, consider co-production solutions to the problems of care fragmentation, and be at a system-wide, cross-organisational level. It follows that the analysis, design and therefore evaluation of integrated care projects should be based upon the journeys which ...

متن کامل

Effect of Education and Telephone Follow-Up on Care Burden of Caregivers of Older Patients with Stroke

Objectives: Stroke is the second most common cause of death and the third leading cause of disability worldwide.  Caregivers of stroke patients experience high levels of care burden that impacts their physical as well as psychological wellbeing. It is necessary to use interventional programs for home caregivers to prevent and relieve their burden of care. Therefore, this study was aimed to dete...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:

دوره   شماره 

صفحات  -

تاریخ انتشار 2017